Idk sounds a bit fucked up to not erase some birth defects and disabilities if you have the means to do so. Don’t have to bring eugenics into it if you can just give the mother a pill that will make it so that the kid won’t have a fucked up leg or something. Hell, if eugenics is the worry, could let that baby be born with a fucked up leg and fix it later.
As someone with disabilities due to multiple genetic problems, If there was a way, when my mom was pregnant, to alter those genes, so I wouldn’t have the BS, and they didn’t, I would cut them out of my life.
That was basically everyone’s parents but Bashir’s.
Yeah at some point in future space tech it becomes a trolley problem where not curing genetic disabilities is as much of a non choice as pulling the lever.
The thing is, Star Trek was a show set in the far future trying to teach us morals about the present. And unfortunately for us, we don’t have space communism so if the choice is between accommodating for birth defects and an ineffective, corruption-prone, dubiously safe eugenics program the choice is a lot easier. They have to communicate the morals of that on the show and it creates a hole in logic.
There’s also a head cannon that the “eugenics wars” that they reference in the show has actually warped the morals of the society they’re in for the worse as any discussion of pre-natal intervention is illogically taboo.
That’s not head-canon. It’s literally a plot point in DS9.
It’s discovered that Julian was intellectually disabled as a child and his parents had him illegally genetically modified. He almost loses his commission and his father ends up being imprisoned over it.
I mean, in response to the last one, the Federation does allow (and sometimes advocates) for the correction of birth defects.
Julian: DNA resequencing for any reason other than repairing serious birth defects is illegal. Any genetically enhanced human being is barred from serving in Starfleet or practising medicine.
Deep Space Nine, “Doctor Bashir, I presume”
Doctor: Yes. It’s a girl. And aside from the deviated spine, she’s healthy.
Paris: Will she need surgery?
Doctor: Fortunately, we’ve advanced beyond that. Genetic modification is the treatment of choice.
Voyager, “Lineage”
So I imagine plenty of disabilities do end up being erased, it’s just that being disabled is also socially accepted to a much greater extent than today.
To add here, not everyone is born with disability but sometimes shit just happens
Yeah, I think for Geordy his eyes just got consistently worse until he was blind without a visor. On Ba’ku his eyes recovered briefly.
He was born blind and remained blind until he got his first VISOR at 5 years old. It’s in the TNG episode Hero Worship. His optical nerve was regenerating on Ba’ku but whatever his disability, it would eat away at it once he left the planet.
I could’ve sworn he was born without optic nerves or something like that.
He mentions that his eyes will deteriorate again once he leaves Ba’ku
From https://memory-alpha.fandom.com/wiki/Geordi_La_Forge#Early_life :
Due to a birth defect, he was born blind
By the way, “again” in that context doesn’t necessarily imply his eyes deteriorated before. It references the previous change, but that includes the improvement, not just some hypothetical previous instance of deterioration.
It’s like saying “he went in the door, then he went back out again,” which doesn’t imply he had previously exited.
Yeah, but if his birth defect had no degenerative component his eyes wouldn’t get worse after being healed by Ba’kus energy field
“DNA resequencing”
If someone in Star Trek is born with a bum knee, they just laser surgery the knee. Deformed backbone, replicate a new backbone. A lot of defects and disabilities can be solved by 24th-century medicine without involving genetics.
McCoy gave that old lady a pill and she regrew her kidney using her own aged body inside of an hour. Apparently, fixes of that type are an over the counter prescription and don’t run afoul of the eugenics laws either.
Approved genetic modifications is more for things like conjoined births or fetal organ failure. Too many toes? Here’s some special shoes, carry on.
Since when is DNA holy scripture? I’d be optimizing that every day.
In Star Trek? Around the aftermath of the Eugenics wars
Yep, but Star Trek is written to make a point about society.
It’s interesting how an Earth conflict influences the whole Federation, tho
It feels very human to ignore the lessons of history because it didn’t happen directly to them.
But its also very human to let perfect be the enemy of good, or to do irrational shit like declare a style of facial hair forever associated with evil because one evil guy used it (As opposed to associating it with say a famous comedian) like we’re afraid to say voldemort.
This is a worthy take that is unfortunately quite rarely seen. People are just not rational enough.
Why wouldn’t you cure things at birth if you already know how to? Like, you know the kid is going to be blind, and you could just give the mom a shot to change that, but you’re gonna choose to let the kid be born blind? I dunno, that’s kinda messed up.
You could make the same argument about down syndrome, autism, being transgender, darker skin tone. Eugenics is not a good thing, it seems appealing at first but it’s a slippery slope and gets ugly very fast. Also they have the technology to accommodate these kinds of disabilities, so why bother with all that when he could get ocular implants and live a relatively normal life.
You’re absolutely right about the examples you mentioned. I still would rather not live, or have lived, than being blind or being born without an arm or something not whole or complete. So I would definitely prevent certain things from being experienced by my children if I had the option.
Which is one of the arguments against the Federations ban on genetic manipulation. There are plenty of others against it. There’s no one answer to this situation, unfortunately.
Because blindness isn’t a disability in the Federation. Geordi lives a full and happy life, and, as OP mentioned, is actually able to save the entire crew specifically because he’s blind.
“Fixing” his blindness in a compassionate, post-scarcity world that has the tools to allow someone to succeed no matter what physical characteristics they possess is like “fixing” a baby’s hair color. It doesn’t make the child’s life easier, so what’s the point other than eugenics?
The Federation is inherently plural, and we see several different attitudes toward disability by different people throughout the series.
Geordi is blind from birth. No one holds it against the guy. He wears a prosthetic vision device called a VISOR which is kind of the vision equivalent of a modern cochlear implant, there’s an implant in his brain that an external sensor device hooks to. It’s not a perfect solution, it gives him headaches, but it allows him to see and function like a sighted person, he can even see outside of the visual spectrum. Several times throughout the series we see him working with his doctor to maintain and adjust his implant when it gives him problems. Several times we see glimpses of possible futures where he has swapped his VISOR for alternative treatment methods, and the canonical future seen in the films has him using implants in his eyes, or even seeing with natural eyes because of that one fountain of youth planet. Throughout the show, people mention other treatments he could be using, but for the run of TNG he prefers his VISOR, which his doctor provides continuous care for. We see him go to Dr. Crusher to have his VISOR worked on repeatedly throughout the show.
Worf was paralyzed in an accident once. A heavy thing fell on him and broke his spine. Klingon culture is extremely ablest and he struggles to stand being seen by his friends or family in this condition, he wants to kill himself rather than live like this. He begrudgingly allows the doctors to try a treatment but quickly deems it unacceptable, so they INVENT SPINAL CORD REPLACEMENT SURGERY for him so that he can continue living his life on his terms. “There’s nothing for it, we’re just gonna have to grow a new backbone and central nervous system for the man.”
Riva, the mediator/diplomat from the episode “Loud as a Whisper,” is deaf. In his words, “Born, and hope to die.” He has no intention of having his deafness cured or worked around, viewing it as a trait of his noble family and as a practical asset. He usually communicates through a trio of translators, but when they are killed, instead of attempting to cure his deafness via technology or medicine, Picard says “Okay it’s time for US to learn sign language so we can talk to this man.” and Data picks it up the fastest and takes on the role of interpreter. Riva’s mission is to bring two warring factions to the negotiating table, so he decides to use sign language as an exercise in learning to communicate with each other. Fun fact: The actor who played Riva is deaf in real life. He asked the producers of Star Trek to make an episode about deaf people and had a lot of creative input on the episode.
===
If there is a through-line to how the Federation treats people with disabilities, it is to prioritize the patient’s decisions. Geordi receives continuous care for his prosthetic vision. They fly in civilization’s leading expert to do an experimental surgery on Worf. The conversation with Riva goes “We can-” “No thank you.” “Okay.”
As for this:
| Geordi…is actually able to save the entire crew specifically because he’s blind.
As Data points out in A Measure of a Man, though it would measurably improve a crewmember’s ability to function because he could see a wider range of the EM spectrum, the Federation does not force members of Starfleet to replace their natural eyes with cybernetic implants.
This is also set in a universe full of sentient aliens with all different kinds of physical abilities and senses. Several species are empathic or telepathic able to sense and/or transmit their own emotions and thoughts. No humans can do that. Again in Measure of a Man, Picard hand waves off a demonstration of Data bending an unbendable girder because “Several sentient alien species possess mega strength.” There’s one episode with aliens that have a kind of solar powered heat ray thing (the plot required the aliens to be able to take hostages and they needed a weapon that Lt. Yar couldn’t confiscate). In a society made up of multiple sentient species that evolved with vastly different physical abilities, I think your whole concept of “handicapped” or “disabled” needs to shift.
The core theme is that the Federation provides individuals with agency over their bodies. Sure, Geordi’s mother could have had his blindness cured before he would have known anything different, but it’s his body and ultimately his choice. Interestingly, we see the opposite with Dr. Bashir. His genetic enhancements don’t just offend the Federation because of historical trauma with the Eugenics Wars but because his parents didn’t even give him choice in the matter (at least, that’s how I’ve interpreted it).
In the episodes of TNG that look at their near future, Geordi has his eyes fixed, or at least has realistic implants that allow him to see normally. Why would he do it if there’s no point? Is he stupid?
save the entire crew specifically because he’s blind
so you take away a persons autonomy to have the potential to be able to see and live a life with natural sight as you see a use for it.
You did a 360 there on the ethics and wandered into utilitarian territory reducing people to things.
You might not define it as a disability but it’s still taking autonomy from someone. They could just as well invent a tool to help save the crew. There is more than one option for things such as that rather than reducing a persons entire definition to their difference and how useful it is to you.
Human condition is more than their differences or their use to you.
I think he was getting at that Geordi’s decision to remain blind and accommodated with his VISOR ended up having unforeseen positive consequences. In other words, pluralism leads to unforeseen positive side effects.
Your use of pluralism here: Romanticizing taking away someone’s choice to be without a disability (or pain given his repeated conversations with doctors) doesn’t make this more palatable. Geordie hadn’t chosen to be blind it was a birth defect. He only gained power to see as a story point in a few episodes. The one time Pulaski did offer it it was clear from Geordie’s response that it isn’t a common known procedure to restore eyesight. Let alone a light one as it was irreversible. Given those parameters: Geordie hesitated because of the “lesser of known evils”.
A major Geordi character arc revolves around his eyesight. Yes, his prosthesis affords him additional abilities and allows him full function, but that says nothing of the otherness he has felt and psychological impact of being different throughout his whole childhood, and the challenges he faced for acceptance, even within StarFleet.
To dismiss his personal struggles while assuming that he’s fulfilled and would OPT to not have regular eyes is incredibly arrogant and ablest, no? It is also deeply lacking in awareness and consideration of psychology, which is pretty bang-on for Boomers of the era that STTNG came out. “Oh, well looking at the END RESULT, he turned out fine, despite his massive trauma.”
The likelihood is that he did not turn out fine, we just don’t see the granular details of his psyche, on screen.
I never saw LaForge as a “disabled person” at all. In my view he had superpowers. What puzzled me was why other characters didn’t wear similar visors. I mean why would blindness be a prerequisite for getting the ability to see in infrared, ultraviolet, etc? Seems like everybody would want that. Especially if it could be ocular implants like he eventually had.
Someone with functioning eyesight wearing the VISOR would just get a mishmash of nonsensical information. Their real senses clash with what the VISOR is sending them. Coincedentally it’s also the exact same reason for another side effect. Pain. Despite Geordi not being able to see, his eyes still sort of fought the VISOR and caused him constant pain. It also had the ability to be hacked which isn’t a great option.
Easy technobabble fix - the visor suppresses the optical neurons, or it simply acts as a blindfold so the real eyes see only darkness. LaForge’s pain was because the tech wasn’t fully developed. I forget if he still had the pain with the prosthetic eyes. Hackability is another problem we probably won’t have in the real future because of quantum encryption or whatever, but it’s still a good plot device present-day people can relate to - no matter how unrealistically it’s portrayed - click-click-click… “okay, I’m in!” LOL.
Easy technobabble fix
Brother, the technobabble is what got us in this situation in the first place. They used the technobabble to create a flaw because perfection in a narrative is boring.
Quantum encryption won’t ever be a “thing.”
All cryptography requires a pool of random numbers as inputs, and while different cryptographic methods are more secure than others, all of them are only as secure as their random number pool. The most secure cipher possible is known as a one-time pad which can be proven to be as secure as a cryptographic algorithm could possibly be, and so the only thing that could possibly lead to it being hacked is a poor random number pool. Since quantum mechanics can be used to generate truly random numbers, you could have a perfect random number pool, combined with a perfect cipher, gives you perfect encryption.
That sounds awesome right? Well… no. Because it is trivially easy these days to get regular old classical computers to spit out basically an indefinite number of pseudorandom numbers that are indistinguishable from truly random numbers. Why do you think modern operating systems allow you to encrypt your whole drive? You can have a file tens of gigabytes bit and you click it and it opens instantly, despite your whole drive being encrypted, because your CPU can generate tens of gigabytes of random numbers good enough for cryptography faster than you can even blink.
Random number generation is already largely a solved problem for classical computers. I own a quantum random number generator. I can compare it in various test suites such as the one released by NIST to test the quality of a random number generator, and it can’t tell the different between that and my CPU’s internal random number generator. Yes, the CPU. Most modern CPUs both have the ability to collect entropy data from thermal noise to seed a pseudorandom number generator, as well as having a hardware-level pseudorandom number, such as x86’s RDSEED and RDRAND instructions, so they can generate random numbers good enough for cryptography at blazing speeds.
The point is that in practice you will never actually notice, even if you were a whole team of PhD statisticians and mathematicians, the difference between a message encrypted by a quantum computer and a message encrypted by a classical computer using an industry-approved library. Yet, it is not just that they’re equal, quantum encryption would be far worse. We don’t use one-time pads in practice despite their security because they require keys as long as the message itself, and thus if we adopted them, it would cut the whole internet bandwidth in half overnight. Pseudorandom number generators are superior to use as the basis for cryptography because the key can be very small and then it can spit out the rest of what is needed to encrypt/decrypt the message from it, and deterministic encryption/decryption algorithms like AES and ChaCha20 are not crackable even by a quantum computer.
This is a rather reductive view of quantum cryptography. The two most common applications of it I hear about is the development of encryption algorithms resistant to being broken on quantum computers (the way, say, Shur’s algorithm is known to break RSA) and techniques like quantum key distribution. Both of these are real problems that don’t become meaningless just because one-time pads exist - you need to somehow securely distribute the keys for one-time-pad encryption. That’s why one-time pads aren’t used everywhere (“it would cut the whole internet bandwidth in half overnight” would not have been a sufficient reason - that’d be a tiny price to pay for unbreakable encryption, if it actually worked).
This is a rather reductive view of quantum cryptography.
Correct = reductive?
The two most common applications of it I hear about is the development of encryption algorithms resistant to being broken on quantum computers
First, I was talking about quantum encryption, not quantum cryptography, which is a bit more broad. Second, we already have cryptographic algorithms that run on classical computers that are not crackable by quantum computers, known as lattice-based cryptography which are way more practical than anything quantum cryptography could offer.
the way, say, Shur’s algorithm is known to break RSA
Shor’s algorithm. Yes, it breaks asymmetrical ciphers like RSA, but we have developed alternatives already it cannot break, like Kyber.
and techniques like quantum key distribution
Classical key exchange algorithms prevent someone from reading your key if they intercept the data packets between you. QKD is entirely impractical because it does not achieve this. Rather than preventing someone from reading your key if they intercept the data packets, it merely allows you to detect if someone is intercepting the data packets. You see, in regular cryptography, you want people to be able to intercept your data. It’s necessary for something like the internet to work, because packets of data have to be passed around the whole world, and it would suck if your packets got lost simply because someone read them in transit, which is why QKD is awful. If a single person reads the data packet in transit then they would effectively deny service to the recipient.
Both of these are real problems that don’t become meaningless just because one-time pads exist - you need to somehow securely distribute the keys for one-time-pad encryption.
One-time pad encryption is awful as I already explained, it would cut the entire internet bandwidth in half because if you wanted to transmit 10 gigabytes of data you would also need to transmit 10 gigabyte key. QKD is also awful for the fact that it would be unscalable to an “internet” because of how easy it is to deny service. It also doesn’t even guarantee you can detect someone snooping your packets because it is susceptible to a man-in-the-middle attack. Sure, the Diffie-Hellman Key Exchange is also susceptible to a man-in-the-middle attack, but we solve this using public key infrastructure. You cannot have public key infrastructure for quantum cryptography.
The only proposed quantum digital signature algorithms are unscalable because they rely on Holevo’s theorem, which basically says there is a limited amount of information about the quantum state of a qubit you can gather from a single measurement, thus creating a sort of one-way function that can be used for digital signatures. The issue with this is that Holevo’s theorem also says you can acquire more information if you have more copies of the same qubit, i.e. it means every time you distribute a copy of the public key, you increase the probability someone could guess it. Public keys would have to be consumable which would entirely prevent you from scaling it to any significantly large network.
That’s why one-time pads aren’t used everywhere, (“it would cut the whole internet bandwidth in half overnight” would not have been a sufficient reason - that’d be a tiny price to pay for unbreakable encryption, if it actually worked).
You are living in fairy tale lala land. Come back down to reality. If you offer someone an algorithm that is impossible to break in a trillion, trillion years, and another algorithm that is in principle impossible to break, but the former algorithm is twice as efficient, then every company on the entirety of planet earth will choose the former. No enterprise on earth is going to double their expenses for something entirely imaginary that could never be observed in practice. You are really stuck in delulu town if you unironically think the reason one-time pads aren’t used practically is due to lack of secure key distribution.
Even prior to the discovery of Shor’s algorithm, we were issuing DHKE which, at the time, was believed to be pretty much an unbreakable way to share keys. Yet, even in this time before people knew DHKE could be potentially broken by quantum computers, nobody used DHKE to exchange keys for one-time pads. DHKE is always used to exchange keys for symmetrical ciphers like AES. AES256 is not breakable by quantum computers in practice as even a quantum computer would require trillions of years to break it. There is zero reason to use a one-time pad when something like AES exists. It’s the industry standard for a reason and I bet you my entire life savings we are not going to abandon it for one-time pads ever.
Didn’t they address that in an episode? Or the movie with Cochrine?
My only problem with this is that Geordi made it clear more than once that not only would he rather just be able to see, but that his VISOR caused him constant pain. I wouldn’t really call that accommodating for his blindness if that’s what was required to get into Starfleet later.
And, of course, that was what made it so impactful when he finally had eyes that worked.
And then there was Melora on DS9. Starfleet could have done so many things to fulfill her dream of traveling the stars without having her be stuck in the chair in near-1g environments or accept Bashir’s treatments. In fact, the only reason so few Elaysians ever left their homeworld was that everyone else was fine with 1g and no one gave a shit about their needs.
Geordi made it clear more than once that not only would he rather just be able to see, but that his VISOR caused him constant pain
it was also suggested that his visor was “superior to human eyes”. star trek is habitually inconsistent about its world and sometimes it is better not to think about it too much.
I don’t think that’s contradictory at all though.
Geordi wanted to be able to see [naturally], but his visor is superior to human eyes in that it can see things that humans can’t naturally see.
To put it a different way: a person with advanced bionic legs that never tire, could run far faster than any natural human, and bend in ways that human legs can’t, would have superior legs. But there wouldn’t be anything wrong with their stance if they said “yeah but I just want normal human legs”.
Geordie’s new eyes were still bionic though weren’t they? It’s been a while, but I’m sure I remember him using them to search for someone in the movie.
Yes, they’re still bionic
I don’t think that’s contradictory at all though.
Geordi wanted to be able to see [naturally], but his visor is superior to human eyes in that it can see things that humans can’t naturally see.
we are nitpicking here, but if i amputate your hand and stitch can opener at its end, you can now do something normal human hand cannot, but i don’t think anyone would call that superior, or prefer it to their own hand.
if geordi decided that after considering all factors, he would rather have normal eyes, then that is definition of “not superior” to me.
and just a reminder that this is the extraordinary experience we are talking about. i am definitely choosing my eyes 😆
I mean a can opener is very different, no? Or at least it is when I try to put myself in those shoes.
A can opener can open cans but nothing more. Sure you gain one piece of functionality, but you lose others.
Geordi’s visor was a bit different in that he could see the visible light spectrum, but also a bunch of other stuff.
bit different in that he could see the visible light spectrum
he could not: https://i.imgur.com/dlVpyIo.mp4
would you want to see like that? i mean if you were born blind and this was your only option, it is definitely better than nothing, but other than that, it is hard no from me.
That’s a visual representation, in the visible light spectrum, of what he sees. He would see it differently than what appears on the viewscreen.
There’s also nothing there that shows or says he can’t see the visible light spectrum.
There’s also nothing there that shows or says he can’t see the visible light spectrum.
there is, it is exactly there on the screen, his perception of visible spectrum is just one step above nothing. would you want to see like that? accompanied by occasional technical problems and pain? would you call that superior to your eyes?
He would see it differently than what appears on the viewscreen.
that is just unfounded assumption, if you want to argue like that, you can make up literally anything and the discussion loses sense (not that the level of sense was very high anyway 😆)
This is a stupid take as well. There is also evidence that the federation does practice the correction of birth defects and disabilities when appropriate.
And why would they not? Allowing such impairments to exist when the medical technology to prevent it is available seems insanely unethical to me. Like breeding pugs because if people stopped doing that the breed would cease to exist, ignoring the fact that being a pug is a miserable existence for the animal.
I believe the most sensible policy for the federation (and us in real life) would be to correct any and all birth defects, disabilities and impairments wherever possible, while accommodating and fostering compassion and acceptance for the cases where it is not possible.
Disabled people are not lesser than anyone else and should have the same capacity to participate in society, but that doesn’t mean we shouldn’t try everything to prevent people from being disabled.
Allowing such impairments to exist when the medical technology to prevent it is available seems insanely unethical to me.
There’s a not insignificant minority of the deaf population who believes that there should be no “cure” to deafness researched or put into practice because they believe it will destroy their community to have children receive this cure at birth. They literally want to deny children the ability to hear, even though we might be able to cure deafness with genetic engineering or other tech
I am aware of that sentiment and consequently find it selfish and ethically objectionable. While I understand that a special bond is formed this way, that happens anyway between halfway decent parents and their offspring because they love each other.
That is not a good enough reason to deny your child one of its senses.
Ok, but I think speaking people need to understand the Deaf perspective as more than just “community” but as also being informed by speaking people, especially experts and medical professionals routinely disregarding the needs and wants of Deaf people to force us into their society. After all CODAs are Deaf too.
For context, I’m a hard of hearing woman who was, at the suggestion of experts, “mainstreamed” (ie my parents were told not to learn sign language or teach it to me because I might prefer it to spoken language), my mother and grandmother also had that experience. I feel cheated out of community, culture, and communication. I learned some sign as an adult but it should’ve been a native language because it’s a language I don’t need assistive devices for
Cochlear implants are great! They’re also uncomfortable to learn to use and painful at first even for adults. But when the question comes up as to whether young children should get them we’re treated as crazy for saying that the child should be taught sign language and given a choice. But instead hearing parents of deaf children usually don’t bother learning sign language.
We might start trusting y’all when you start demonstrating that you care more about what’s best for us than what makes us easier to deal with for y’all.
As another comment in the thread said, this situation is fairly different from a cochlear implant for a number of reasons. This situation is most similar to child being born to deaf parents with normal hearing. Not the same as a cochlear implant at all. The choice in this situation is being deaf or having normal hearing, no inbetweens.
Me personally, I wouldn’t want to pass on any of my genetic gunk to my kids in the name of culture, communication, or community. That’s just cruel and unusual. I would not be surprised if my kids resented me for it if they knew it could have been prevented. Even more so if cellular reconstruction technology is available to repair stuff later in life. And it’s not like they can’t participate, they’re still your kids, they’re just different from you in a small way. Humans are adaptable.
Culture should not always be preserved. My family has had to learn that the hard way.
There was an episode of scrubs about that
Plus in Geordie’s case, his visor gives him better than normal sight. He can look at parts of the electromagnetic spectrum other than the visible wavelengths, so restoring his natural sight would have been giving him a handicap rather than removing one.
Also the whole “that disability is a part of who they are” sounds a lot like reducing people to their disabilities. Like it’s one thing if there’s nothing that can be done or if the best we can do isn’t enough to cause it to no longer be a disability, then they should be accepted disability and all. But it’s another thing if the disability could be corrected or made redundant (like Geordie’s visor giving him better than normal vision).
I don’t think the timing will work out for me, but if cybernetics get going during my lifetime, I’d consider getting augmentations. A coprocessor and memory expansions would be great, though I’d probably need tin foil hats or a magneto helmet to protect from solar flares and EMPs.
It’s crazy to me that some people think improving people’s capabilities, disabled or not, is unethical. No one bats an eye if someone gets a broken arm set properly to avoid it becoming a disability.
This is the breath of fresh air this dumb post made me need. Thank you.
It’s a matter of quality of life. If someone without conventional hearing can have the same quality of life through other means, then there is no need to “fix” them, unless that’s what they want.
Obviously debilitating illnesses and pain are still dealt with, but stuff like missing limbs or other traits that we might call handicaps are not the same impediment in the future as they are to us, because there are so many possible paths for every individual to choose, and many of those might even be better suited to someone with a unique physiology.
Why the hell would it be eugenics to cure disabilities. If you could turn me from a trans chick into a cisbabe, I’d be down. I mean on one hand periods will suck, but on the other, maybe my fucking hair will grow out!
I’m in the same position, but if I could choose between the best hearing aids the 24th century can offer or repairing my ears, then I’m going full Geordi. Much in the same way I know some trans women wouldn’t make the choice we would.
And that’s the thing, routinely Star Trek shows disabled characters having choices in how to approach their situation and making the choices they feel are right for them. Some people will take a 5% chance of negative consequences to get their legs back, and others will take a futuristic mobility aid instead.
We actually already see this in cochlear implants. They’re difficult; unpleasant, and would give you hearing you don’t otherwise have
Here is my take, assuming:
- We have the ability to remove all birth anomalies
- It is safe and effective, i.e. not an experimental technique
- It is not controversial, i.e. curing sickle cell is just the done thing\
- Scanning tech is much better than today
Situation 1:
Woman learns she is pregnant, say week 6. Gets a routine scan on the embryo. She discovers it has a genetic disorder. That will cause it to not be able to breathe well, running and playing will not be an option for your baby, they will survive; sweet no brainer there; splice in the fix doc. Correction is spliced in the next week, monitoring for rest of normal pregnancy.Situation 2:
Woman learns she is pregnant, say week 6. Gets a routine scan on the embryo. Doctor says, looks like there is a genetic defect, the audio nerve is not going to develop normally, your baby will hear badly at birth, and then over the next two years will go permanently deaf. Implants could fix this issue after birth, and living as a deaf person is not difficult. However we can ensure that the nerve develops normally and your baby will have perfectly normal hearing.In situation 1, the obvious answer is to fix the issue, having life long breathing difficulties that could easily be avoided would be cruel.
In situation 2, in my opinion it would also be cruel to impose on a kid; hey we could have fixed your hearing in a safe and effective way, but we decided for you before you were born that you would be “special”.I get where people are coming from, but they are looking at it with 2024 eyes, not 2424 eyes. Why would you impose on a kid, who has no say in the matter, a disability? Because that is the choice you are making, you are imposing a disability on a child that does not need to be there.
We currently give women folate, to protect against neural tube defects; along with a bunch of other interventions. We are already “interfering” with the “natural” progress of pregnancy and birth, we are only going to get better at it.
And also the conflating of eugenics and fixing birth defects is completely off base. These are only related by the fact that breeding is involved; they have nothing in common beyond that. In the same way that my kitchen knives would make great stabbing weapons, but cooking and stabbing only really have the tools in common.
And also the conflating of eugenics and fixing birth defects is completely off base
It’s not off base and what you’re describing is called liberal eugenics, or new eugenics.
[…] some critics, such as UC Berkeley sociologist Troy Duster, have argued that modern genetics is a “back door to eugenics”.
I’m sure the laws set in place after the eugenics wars would be strict enough to not leave such wiggle room.
It doesn’t really seem like in either situation I described that the treatment-enhancement gap has been breached.
There is no PGD, we are considering Star Trek levels of scanning technology. Both situations resulted from natural fertilisation, there was no group of potentials to select from.
The goal of eugenics, is unambiguously, to breed for some ideal. This resulted in some pretty dark times in the recent past.
Realistically, a lot of medical technology today is the antithesis of the eugenic ideal. Allowing those, who in the past, would have died from various causes to live. We at a species are the stronger for it.
Fetus is developing normally, except it has no ocular nerves. There is no cure for this. Baby is born and neural interfaces are implanted, along with a device for feeding EM sensory data directly into the brain.
Ok but for scenario 2 have you asked the deaf? Many of us say to do just that. In fact we disproportionately fight the hearing by saying that infants cannot consent to cochlear implants
That is an interesting point, as you say infants cannot consent to implants. Which does raise ethical questions.
But you are, I think, still looking from a 2024 perspective, where none of the technologies are even remotely available.
If you can consider it from the 2424 perspective, the treatment is non-invasive, permanent, safe and effective. It has been the standard for 100 years. Star Trek medical tech is magical to us because it is simply a story, but consider if it were real, what argument could you make to withhold the treatment?
I would see this as similar to the anti-vax arguments; withholding vaccines from a child who then goes on to catch a life altering disease, is a form of abuse. The kid cannot make its own judgements or medical decisions, but it sure can catch polio.
Would deliberately withholding “cures” be considered child abuse?
I took several years of sign language and I have to be real, the deaf community at large have some fucking weird opinions about healthcare
Deaf kids getting shunned because they got a cochlear implant is a good example
Or parents refusing inexpensive implants early in life for their kids because they’d rather their kid be deaf like them than even have a chance to develop regular speech patterns. It’s cruel.
Combine this with the simultaneous victim-complex about how hard it is being deaf (which is entirely fair. We did a project where we all wore earplugs for a week at school, and that was HARD. Got really good at cheating in ASL tho) and it all makes me feel kinda…. Icky?
“Being deaf isn’t a disability, but also we will shame you if you get treatment. Also being deaf is so hard and there’s a lot we can’t do. But I won’t let me daughter get implants, because then she would be less deaf than me, which isn’t a disability”
That is a difficult question. I would err on the side of yes. With some caveats.
Not treating some serious genetic conditions when safe, effective and proven treatments are available. Could easily be construed as abuse.
When considering the Star Trek universe medical care is free and easily accessed. Treating these conditions would be the default.
Turning this the other way around, and looking at it from the point of view, that the technology is the standard. What argument could you make in favour of leaving the condition in place?
The deaf see it similar to how the intersex do, that it should be the individual’s choice when they’re old enough to decide.
Except that’s way after critical language development could be aided by implants, leaving deaf adults who later decide to get them stuck having to relearn how to talk.
And it’s cruel, because then they never get the opportunity to develop speech when they’re young with audible feedback.
“curing at birth” != “Eugenics”
Still, the spirit of accommodation is spot on.
They’re not totally wrong either, just missing a step and leaving a gap.
Genetic engineering is strictly outlawed in the UFP which came about from the Eugenics wars.
https://youtu.be/bqm_Iq8rFeg?t=16
“Surely by the 24th century, they would have found a cure for male pattern baldness.” Gene Roddenberry had the perfect response.
“No, by the 24th century, no one will care.”
Let it be known, however, that Gene did say this after aggressively petitioning against Patrick Stewart as Captain. His baldness was specifically mentioned. According to Patrick anyway
well, he didn’t mention that in the bloody video. I blame Patrick Stewart for making me look like a fool.
Patrick has been telling this story for a while at the panels, Frakes and others will tell it too. Sometimes it comes with that caveat and sometimes not. I’ll see if I can find the clip where he talks about that.
Meanwhile Shatner was stealing half a dozen of Kirk’s toupées every season…
The point about accomodation is the key here.
If being born without functioning legs isn’t actually an impediment or challenge because society makes allowances for people without legs, then it’s no longer a handicap!
If a blind person has options beyond merely having their sight “restored” to that of the baseline “normal”, then they have options that might open up paths that regularly sighted people don’t have, in which case their unique trait of being blind becomes an asset.
There’s the secret to the utopia Star Trek positsv not that we try to “cute” everyone born different, but that we instead create opportunities for them to thrive as they are. In the future of Star Trek, the word “disability” is probably alien to them. Rather, they would describe someone in our time with such challenges as “disenfranchised” because we don’t offer them opportunities.
STRICTLY PROHIBITED (unless you’re a good boy doctor)
His parents paid the price.
The iron price, or gold (pressed latinum)?
Is over thinking tv shows a disability? Asking for a friend, obviously.
If me writing a 20 page essay about my favorite TV show and being a major contributor to the wiki counts as a disability, then I want a parking permit.
Granted on the premise that leaving the house should be rewarded.
Why is Barclay disabled. Unless being a perv is a disability.
Also what disabilities do Julian and Tilly have?
Tilly is obviously ginger
Lt. Barclay has an anxiety disorder which greatly interferes with his ability to live his life as he wants to.
Holodeck addiction is a disability I guess
He appears to be on the spectrum
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