As someone with a chronic incurable disability, I’m tired of abled bodied people deciding for us which of our experiences count as ‘evidence’ and which do not.
People have this perception of modern medicine as an infallible cure-all that isn’t saddled with systemic discrimination and neglect of women and minorities.
It doesn’t matter how effective a medication is for a certain condition or for off label use. The only thing that matters is that that clinical trials are worth the investment to pharmaceutical companies, and the people most worth investing into are those with money and the privilege of being heard by their doctors.
The rest of us can continue screaming into the void as our symptoms are dismissed and as we are treated like unreliable witnesses to our own bodies. ‘Have you tried yoga?’ ‘You just need to lose weight.’ ‘Abdominal pain? It’s just your period.’ We are treated like we aren’t trying our hardest to live with every symptom. And then when we find something that works, we are told that ‘it’s not covered by insurance’ or ‘there is no evidence that it works’ or ‘it’s just placebo’. It’s like nothing we feel in our body is true and everything we say is treated as a drugseeking lie.
Fuck the cherry picked ‘evidence’. The system is broken and chronically ill people are left to suffer.
On fucking point. My mom, who has seen me deal with my MS and all it’s myriad of symptoms has still told me time and again I should try yoga to help with things that are just how my brain is damaged. I fucking hate cherry picked evidence and wish education was more accessible so more people with disabilities could more easily become doctors.
Avastin is one of the dumbest examples possible in this Article. It’s used to treat age-related macula degeneration successfully for years as off-label
Wait, I thought their job was to revoke approval for safe drugs that the snowflakes don’t like?
